Leaving the hospital and returning to daily life after receiving an LVAD marks a significant milestone in your recovery. While it’s exciting, it also brings changes and challenges that will require adjustment and patience. Here’s what to expect and some tips to help you thrive during this phase.
Life Adjustments After Discharge
- Temporary Limitations:
- For the first few weeks, you’ll have restrictions such as no heavy lifting, no driving, no seatbelt use, and no showers. These limitations allow your body to heal and reduce the risk of complications.
- Healing Progression:
- Over time, these restrictions will ease as your strength and confidence return. Be patient with yourself during this period. Recovery is a marathon, not a sprint.
- Everyday LVAD Management:
- You’ll need to carry your backup bag, batteries, and other equipment daily. Traveling and outings may feel a bit more complex initially, but with practice, these adjustments become second nature.
- Always monitor battery life and plan accordingly when you’re away from home.
Practical Tips for Easing the Transition
- Start Slow:
- Don’t expect to resume your full routine immediately. Take it one step at a time and listen to your body. It’s normal to have ups and downs, but overall, you should see consistent improvement.
- Delay Major Purchases:
- Before investing in expensive LVAD-specific gear, try to make do with what you already have. Many people find affordable and effective options on platforms like Amazon. Specialty items can be considered later if needed.
- Follow Rehabilitation Plans:
- Stick to the recommendations from your rehab team. Avoid pushing yourself too hard—consistency and adherence to their guidance will yield better results than overexertion.
- Adhere to Safety Rules:
- Follow all safety protocols, such as:
- Keeping backup equipment with you at all times.
- Avoiding sleeping on your batteries.
- Staying vigilant about equipment care.
- These rules are designed to keep you alive, and while they may feel cumbersome, they’re essential.
- Follow all safety protocols, such as:
Finding Purpose and Community
- Identify Your “Why”:
- Life with an LVAD is a second chance. Discover a purpose or passion that gives you meaning—whether it’s family, hobbies, or making a difference in your community. A strong “why” can motivate you to overcome challenges.
- Mental Health Support:
- Stay connected with your mental health team. Lean on the resources you’ve established, including friends, family, and professionals, to navigate any emotional hurdles.
- Join the LVAD Community:
- Connecting with others who understand your journey can be transformative. Attend local support groups, engage with online forums or Facebook communities, and seek out nonprofits that support LVAD patients.
Embrace the Opportunities
Although life with an LVAD isn’t perfect, it opens the door to new opportunities and experiences. With proper care, a supportive community, and a positive outlook, you can thrive. It’s a journey of adjustment, resilience, and, ultimately, a celebration of life.
You’ve made it this far, and your journey is just beginning. Take it one day at a time, and know that every challenge you face is a step toward a brighter future. Consult with your medical team if you have concerns.