LVADStrong is committed to respecting and protecting your privacy. This Privacy Policy explains how we collect, use, and safeguard your information when you visit our website at lvadstrong.org or interact with us in any way. By using our site, you consent to the practices described in this policy.
We believe that privacy is a fundamental right. We aim to be clear and open about what data we collect, why we collect it, how we use it, and how you can manage it. This document is meant to be straightforward, comprehensive, and easy to understand.
LVADStrong is a nonprofit organization dedicated to supporting patients with Left Ventricular Assist Devices and their caregivers. Our mission is to provide education, encouragement, and community to those navigating life with advanced heart failure. We offer mentorship, patient and caregiver stories, volunteer opportunities, outreach programs, and digital resources. Our website is a central hub for accessing these services and connecting with our team.
We collect information in two main ways. First, through information you provide directly. Second, through automatic data collection when you browse our website.
You may voluntarily share personal information with us by submitting forms or subscribing to services on our website. This includes, but is not limited to:
Depending on the form or interaction, we may collect:
We will always request only the information necessary to carry out your request or provide the service you asked for.
When you visit our website, certain information is collected automatically through cookies and analytics tools. This helps us understand how people use the site so we can improve the user experience and track our outreach effectiveness.
The data collected may include:
We use Google Analytics to collect and analyze this data. Google Analytics does not identify individual users but uses cookies to track aggregate behaviors.
Cookies are small text files that are placed on your device to enhance the functionality and performance of a website. We use cookies to:
When you visit our website, you will see a cookie consent manager that allows you to choose which types of cookies you allow. You can change your preferences at any time. Some cookies are necessary for the basic functioning of the website and cannot be disabled.
We use the information we collect for the following purposes:
We will only use your personal information for the purposes for which it was collected unless we are required by law to do otherwise.
We do not sell, rent, trade, or otherwise disclose your personal information to third parties for commercial purposes. However, there are some limited cases in which we may share your information:
We take steps to ensure that any third party with access to your data complies with applicable privacy laws and uses your information only in accordance with our instructions.
When you sign up for our newsletter or submit a form that includes your email address, we may send you periodic updates, announcements, or invitations. You can unsubscribe at any time using the link in any email we send.
We do not send unsolicited emails. We do not share your email address with third parties for promotional purposes.
If you choose to share your story as a patient or caregiver, we will first collect basic contact information through a form. A member of the LVADStrong team will follow up with you personally to gather your story and confirm all details.
Stories are only published on our website with your full knowledge and explicit written consent. You have the right to request edits or removal of your story at any time by contacting us.
We take extra precautions with these submissions to ensure they are treated respectfully, and we never publish personal or medical information that you have not expressly approved.
When you fill out a volunteer form or request a community visit from LVADStrong, we collect contact and logistical information so we can coordinate with you effectively. This information is not used for any purpose other than responding to your request and helping facilitate our programs.
Your information will not be published or shared without your permission.
We retain your personal data only as long as necessary to fulfill the purpose for which it was collected. For example:
We regularly review our data storage practices and securely delete information that is no longer needed.
You have the right to access, update, or delete the personal information we have collected about you. You can:
To exercise any of these rights, please contact us using the information provided at the bottom of this page. We may need to verify your identity before processing your request.
We take reasonable precautions to protect the security and integrity of your information. This includes secure connections (HTTPS), trusted third-party tools, and limited access to sensitive data. However, no internet transmission is completely secure. We cannot guarantee absolute security, but we do our best to protect your information at all times.
Our website and services are not intended for children under the age of 13. We do not knowingly collect personal information from children. If you believe that a child has provided us with personal information without parental consent, please contact us immediately and we will take appropriate steps to delete it.
Our website contains links to external websites, including donation platforms and social media accounts. We are not responsible for the privacy practices or content of these third-party sites. We encourage you to review their privacy policies before sharing any personal information with them.
We may update this Privacy Policy occasionally to reflect changes in our practices, legal requirements, or website features. When we do, we will revise the “Effective Date” at the top of this page. We encourage you to review this page periodically to stay informed about how we protect your information.
If you have any questions, concerns, or requests related to this Privacy Policy or our data practices, please contact us:
LVADStrong
Website: https://lvadstrong.org
Email: admin@lvadstrong.org
We are here to support you and answer any questions you may have.